Cornelia de Lange Syndrome Patient Stories

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Cornelia de Lange Syndrome: Megan’s Story

megan and her mother

As a child with Cornelia de Lange syndrome, little was known about how the disorder would affect Megan Ramsey’s long-term functioning, but she confronts every challenge with an indomitable spirit.

Cornelia de Lange Syndrome: Connor’s Story

When Connor Feehan was diagnosed with Cornelia de Lange syndrome, his family learned that living with this disorder is about adapting, adjusting, and expecting the best. The Children’s Hospital of Philadelphia is helping them do that.