Sickle Cell Disease Resources

For Caregivers

Be The Match® provides patients and families with educational resources and support.

The Peer mentors are trained volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant.

In order to be matched, you fill out the online form that you can get to from the link above and answer questions about what you are looking for in a peer connection, your child’s diagnosis, where you are in the transplant process.

Mentors are volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant.

Their mentors who are caregivers for pediatric patients are limited.

To connect, complete an online form at the bottom of the page linked above with demographic information about yourself and the patient.

This video will help you learn what gene therapy is and how it works.

Information on the transplant process at CHOP.

This educational video produced by Be The Match® explains the basics of a blood or marrow transplant.


For Children and Siblings

KidsHealth.org offers information for kids and teens on a variety of health topics in an easy to understand way.


Support and Education Groups

The Children's Hospital of Philadelphia offers support groups for parents and teens facing the challenges of life with sickle cell disease.


Tools for Success at School

The Sickle Cell Center at CHOP offers comprehensive information for educators on sickle cell disease and how it can affect the school life of children.


Websites

The Sickle Cell Association assists the sickle cell community, especially adults, with non–medical needs to help improve their quality of life.