CHOP Travels to D.C. for 2019 Speak Now for Kids Family Advocacy Day

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Family Advocacy Day On June 25-26, Cardiac Center at CHOP patients Aiden and Madison Buczko, 6, and their cardiologist, Dr. Aaron Dorfman, participated in the 2019 Speak Now for Kids Family Advocacy Day in Washington, D.C. Alongside staff from CHOP’s Government Affairs Department, Aiden, Madison and their mom Denise met with Members of Congress to share information about their health journey and advocate for the importance of children’s healthcare.

Madison and Aiden were born eight weeks premature, both with critical congenital heart defects, in the Special Delivery Unit at CHOP. Between the two of them, they have had three open-heart surgeries, seven cardiac catheterizations, one eye surgery, six hospitalizations for illness, and many, many diagnostic tests.

Madison was diagnosed with Tetralogy of Fallot with pulmonary atresia and multiple major aortopulmonary collaterals. She had her first cardiac catheterization within 24 hours of being born.  Aiden’s journey was a bit different than his sister’s because he was expected to be the healthy twin, but he had his first open-heart surgery at three weeks old.

Madison and Aiden continue to be followed by the Cardiac Center at CHOP team and see their cardiologist, Dr. Aaron Dorfman, close to their home at CHOP’s Specialty Care and Surgery Center in Voorhees, NJ.

We thank the Buczko family and Dr. Dorfman for joining us in Washington and for being such excellent advocates for CHOP and children’s health!

Learn more about Speak Now for Kids and find tips for how you can be an advocate for issues that impact children.

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