Patient Stories

CHOP’s diagnosis and treatment of a rare lung disease solved a medical mystery for Jacob. Shared care with his Virginia pulmonologist is keeping him healthy.

Diagnosed with leukemia at 3 months old, Asa received a revolutionary therapy that was pioneered at CHOP.

When an active 11-year-old suffered from a rare lymphatic disorder, his military family traveled to CHOP for the expert care he needed.

As a newborn, Ellie spent time in CHOP’s NICU. When she developed symptoms that led to a cancer diagnosis, the family knew that CHOP was the right place for care.

Genetic sequencing revealed that Rafi had an extremely rare, often fatal disease — and the discovery was amazingly made before he had serious symptoms.

Rohan, 13, isn’t sure what path he wants to take in the future — athlete, engineer, architect, analytics or maybe some creative pursuit — but what he does know is that he’ll be successful because of the guidance he’s received from Jenelle Nissley-Tsiopinis, PhD, a psychologist in Center for the Management of ADHD at Children’s Hospital of Philadelphia.

Born with a rare condition affecting her bone marrow, 2-year-old Elizabeth has large care teams at CHOP and her local hospital who coordinate to keep her growing and happy.

Devon underwent surgery, chemotherapy and proton therapy for a brain tumor the size of a softball. Within months, she started college and made the Dean’s List.