Most Recent Articles
World Hemophilia Day 2015
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The CHOP HTC in Voorhees, NJ, celebrated World Hemophilia Day on April 17, 2015. Staff were invited to wear clothing “from a country they cared about.”
Tell Me More about Von Willebrand Disease
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Von Willebrand disease (VWD) is a bleeding disorder caused by having too little von Willebrand factor (VWF) protein or VWF that doesn’t work well.
Learning More about Platelet Disorders
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Platelet disorders are an underrecognized cause of bleeding in patients with inherited causes of bleeding. These disorders have only recently become the focus of research efforts.
The Affordable Care Act and You
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In response to problems in the U.S. healthcare system, the federal government passed a healthcare reform law called the Patient Protection and Affordable Care Act.
Care for the Caregiver
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Be aware of the signs of caregiver burnout. It may not be obvious to you, may develop over time, and may not be linked to a specific time or event that you can pinpoint.
Bleeding Disorders Family Advisory Council Back in Business
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The primary goal of the Bleeding Disorders Family Advisory Council is to promote communication between the HTC and our families and patients.
Gene Therapy for Patients with Factor IX Deficiency
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In December 2012, CHOP opened a gene therapy clinical trial for patients older than 18 years of age, with factor IX levels equal to or less than 2 percent.
The Importance of Genetic Testing for Hemophilia
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Genetic testing can help us better estimate risk for inhibitor formation, since inhibitors are more common with certain mutations causing hemophilia.
Safety, Sports and Activity Limits
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Children and adolescents with bleeding and clotting disorders (who may be on anticoagulation therapy), picking a sport requires special consideration to minimize risks of bleeding.
Oral Anti-Coagulants
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New anticoagulants have been approved by the FDA to treat adults. Clinical trials will show whether they are safe and effective for children.