Most Recent Articles
Navigating Continuous Dextrose and Nutrition for Children with HI
Published on in HI Hope
Many children with hyperinsulinism (HI) have feeding aversion — as many as 60%. The use of tube feedings, and possibly continuous dextrose, to control their blood sugar, among other things (effect of medications, the appetite suppressing effects of insulin, etc.), may exacerbate their aversion to eating by mouth.
Understanding the Benefits of a Neuropsychology Evaluation
Published on in HI Hope
If Leela Morrow, PsyD, the psychologist for the Congenital Hyperinsulinism Center at Children’s Hospital of Philadelphia, gives your child a referral for a neuropsychology evaluation it’s nothing to be afraid of. In fact, it may give your child a roadmap to success.
Our Aim: Finding Answers for Children with Negative Genetics
Published on in HI Hope
Much progress has been made over the last 25 years when it comes to identifying the genetic mutation that is causing a child’s congenital hyperinsulinism (HI).
Rare Pair: HI and Kabuki Syndrome
Published on in HI Hope
Low blood sugar is one of the symptoms of Kabuki syndrome, a genetic disorder that affects multiple systems in the body but can be tricky to diagnose.
Coping with a Dual Diagnosis
Published on in HI Hope
Parents are usually blindsided when they find out that their child has congenital hyperinsulinism (HI), a rare genetic disorder that depresses blood sugar to dangerously low levels.
The Rare Intersection of HI and Turner Syndrome
Published on in HI Hope
Sometimes rare and super rare genetic conditions occur within the same child. That’s the case for Turner syndrome, which has an incidence rate of about 1 in 2,500 female births, and congenital hyperinsulinism, which happens about once in 50,000 births.
How a Psychologist Can Help HI Families
Published on in HI Hope
When families learn that their child has congenital hyperinsulinism (HI), it’s not uncommon for parents to be overwhelmed by feelings of anxiety, isolation or helplessness.
Psychologist Joins HI Team
Published on in HI Hope
Last fall, Leela Morrow, PsyD, joined the team at the Congenital Hyperinsulinism Center at Children’s Hospital of Philadelphia, adding another service to the comprehensive program.
Managing HI into Adulthood
Published on in HI Hope
The Congenital Hyperinsulinism Center at CHOP has been with your family every step of the way as you’ve treated and managed your child’s HI.
What Are the Chances Our Next Child Will Have HI?
Published on in HI Hope
When a family has a child with congenital hyperinsulinism, a question often arises: Will any future child also have HI?