HI Hope

Most Recent Articles

Meet the HI Center’s Nurse Coordinators

Published on

Nurse coordinators at the Congenital Hyperinsulinism Center assist patient families before the first appointment and through admission and follow-up.

Navigating Continuous Dextrose and Nutrition for Children with HI

Published on

kid with dextrose packsack

Many children with hyperinsulinism (HI) have feeding aversion — as many as 60%. The use of tube feedings, and possibly continuous dextrose, to control their blood sugar, among other things (effect of medications, the appetite suppressing effects of insulin, etc.), may exacerbate their aversion to eating by mouth. 

Understanding the Benefits of a Neuropsychology Evaluation

Published on

If Leela Morrow, PsyD, the psychologist for the Congenital Hyperinsulinism Center at Children’s Hospital of Philadelphia, gives your child a referral for a neuropsychology evaluation it’s nothing to be afraid of. In fact, it may give your child a roadmap to success.

Rare Pair: HI and Kabuki Syndrome

Published on

Low blood sugar is one of the symptoms of Kabuki syndrome, a genetic disorder that affects multiple systems in the body but can be tricky to diagnose.

Coping with a Dual Diagnosis

Published on

Parents are usually blindsided when they find out that their child has congenital hyperinsulinism (HI), a rare genetic disorder that depresses blood sugar to dangerously low levels.

The Rare Intersection of HI and Turner Syndrome

Published on

Sometimes rare and super rare genetic conditions occur within the same child. That’s the case for Turner syndrome, which has an incidence rate of about 1 in 2,500 female births, and congenital hyperinsulinism, which happens about once in 50,000 births.

How a Psychologist Can Help HI Families

Published on

When families learn that their child has congenital hyperinsulinism (HI), it’s not uncommon for parents to be overwhelmed by feelings of anxiety, isolation or helplessness.

Psychologist Joins HI Team

Published on

Last fall, Leela Morrow, PsyD, joined the team at the Congenital Hyperinsulinism Center at Children’s Hospital of Philadelphia, adding another service to the comprehensive program.