Caregivers and Family Based Treatment (FBT) Focus Group
Contact
Description
Despite the widespread prevalence of anorexia nervosa, only 34.5% of those diagnosed seek treatment. However, the barriers faced by parents and caregivers when accessing and implementing Family Based Treatment for youth with anorexia nervosa have not been explored. In order to appropriately assess these barriers, we need input from caregivers about their experiences.
To do this, we are recruiting up to 15 caregivers of youth with anorexia nervosa who struggled to access care to take part in an online focus group. Inclusion criteria include:
1. Caregiver of a child with anorexia nervosa
2. Actively sought Family Based Treatment within the last 5 years
3. Child with anorexia nervosa was under 18 when the caregiver sought treatment
4. Self-identify as someone who encountered barriers to accessing care
5. Between the ages of 25-65
6. Able to access the internet in order to participate via Teams
All potential participants who appear to meet inclusion will be provided with information about the research study. Participants who are interested will meet with the study coordinator via phone, be provided with more information, and (if inclusion and exclusion criteria are met) scheduled for a remote visit.
Eligibility and criteria
What to expect
Once enrolled, parents will be sent a link with all proposed questionnaires available for review. Caregivers are NOT asked to complete these questionnaires - they will serve as a starting point for a conversation about what needs to be assessed. The focus group will take place via Teams and will be recorded.
During the focus group, caregivers will be asked to provide feedback on the questionnaires. It is anticipated that the focus group will take an average of 60 minutes.
At the end of the group, caregivers will be compensated for their time.
After all focus groups are complete, parents will be sent a link with the final questionnaire for review and they will be asked to provide final written feedback.
Related specialties
We need families like you
Your time and participation make a difference in supporting the work of the Research Institute and children in our community. Learn more about opportunities to participate in our research.