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Novel Imaging in Autosomal Recessive Polycystic Kidney Disease

Novel Imaging in Autosomal Recessive Polycystic Kidney Disease

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If you are interested in participating in the study or want to learn more, please contact: Contact us
This study is no longer recruiting.

Description

In this study, we are developing new ultrasound and magnetic resonance imaging (MRI) methods to measure kidney and liver disease severity in autosomal recessive polycystic kidney disease (ARPKD). Participants in this study will include individuals with ARPKD, and a comparison group of healthy individuals without liver or kidney disease. Individuals of any age may take part in the study. 

Eligibility and criteria


IRB Number:
14-010785
Clinical trial phase:
N/A
Official title:
Novel Imaging Techniques in Autosomal Recessive Polycystic Kidney Disease

What to expect

Study procedures include an ultrasound and MRI scan of the abdomen (MRI is only done in participants able to lie still for up to an hour, generally at least 8 years old). Participants with ARPKD will also have a blood test and will be asked to complete 1 follow up visit per year for up to 3 years after baseline.
Smiling CHOP patient holding shopping bag

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Your time and participation make a difference in supporting the work of the Research Institute and children in our community. Learn more about opportunities to participate in our research.

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