Guide for Parents
Our goal at the Congenital Hyperinsulinism Center is to help you take your child home as soon as possible, either cured of hyperinsulinism or on a safe and manageable treatment plan.
Caring for your child
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Showing 1 - 10 of 15 results
Learning More About Children with HI and Kabuki Syndrome
A study from CHOP’s HI Center provides insights into how to best care for children with Kabuki syndrome and hyperinsulinism.
Neurometabolic Optical Monitor: A Game-changer for CPR and Critical Care
Researchers at Children's Hospital of Philadelphia are working to create a non-invasive device to measure brain oxygenation during CPR and critical care, with the goal to reduce brain injury and death.
Diagnóstico de Hiperinsulinismo, Tratamiento, Resultados e Investigación
Vea el video para conocer más sobre la atención de expertos que brinda el Centro de Hiperinsulinismo Congénito de The Children's Hospital of Philadelphia.
Congenital Hyperinsulinism International
Congenital Hyperinsulinism International (CHI) is a charitable organization dedicated to improving the lives of children, adults, and families living with congenital hyperinsulism.
Going to School with Hyperinsulinism
When you're preparing to send a child with hyperinsulinism to school, these are some important steps you should take to make the process easier for everyone.
Undiagnosed Diseases Network (UDN)
Research program funded by the National Institute of Health (NIH). Some patients seen in the CHOP UDP are eligible and will also be asked if they want to enroll in the research side. You can visit their website to learn more about the research they conduct. Adult patients may be seen by the UDN site at Penn.
National Organization for Rare Disorders (NORD)
An educational link for organizations and individuals concerned with a rare disorder. They monitor legislation, research diseases, award grants and network individuals.
Applying for Pennsylvania Medical Assistance (PAMA)
This resource from Children’s Hospital of Philadelphia describes how to apply for PA medical assistance as secondary insurance.
Orphan Disease Program
Visit this website for details on orphan (rare) diseases and treatments. Additional information like drug development, orphan product designations, and how the FDA supports rare disease research. You can also find a list of drugs approved for rare conditions and ongoing clinical trials.