Division of Endocrinology and Diabetes Patient Stories
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Three Generations Under CHOP’s Care for HI

Grandfather, mom and granddaughter have all been treated at CHOP for congenital hyperinsulinism (HI). This family’s history shows the evolution of HI care.
Papillary Thyroid Cancer Second Opinion: Rowan’s Story

After Rowan was diagnosed with thyroid cancer, she was treated with precision medicine at CHOP by experts in pediatric thyroid issues and rare pediatric cancers.
Hyperinsulinism and Kabuki Syndrome: Amelia’s Story

A diagnosis of Kabuki syndrome connected all of Amelia’s symptoms, and CHOP has experts to care for each and every condition.
Pseudotumor Cerebri Syndrome: Lily’s Story
With pseudotumor cerebri syndrome, the symptoms are real even though the tumor is not. Lily relied on her CHOP doctors and her own perseverance to combat the condition.
Insulinoma: Leilani’s story

When doctors in Florida struggled to diagnose Leilani’s rare illness, her parents pushed to bring her to Children’s Hospital of Philadelphia, where she was cured.
Hyperinsulinism and Turner Syndrome: Aliza’s Story

It was only after Aliza’s parents brought her to CHOP that she received expert care for her two diagnoses: Turner syndrome and hyperinsulinism.
Endocrine Late Effects After Cancer Treatment: Raine’s Story

Treatment for childhood leukemia has had several long-term effects on Raine’s health, but this successful college graduate is pursuing her dream.
Type 1 Diabetes: Morgan’s Story of Successful Advocacy

Strong parent advocacy ensured Morgan’s diabetes was under control at school. Now Morgan is advocating for others.
Hyperinsulinism and Post-pancreatectomy Diabetes: Jenny’s Story

A CHOP research study seeks to even out the ups and downs of post-pancreatectomy diabetes. Jenny, who has hyperinsulinism, can’t wait for the results.
Turner Syndrome Second Opinion: Carlin’s Story

Carlin, 12, has Turner syndrome. She has been receiving comprehensive care and a network for support and training at Children’s Hospital of Philadelphia.