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Cancer Predisposition Program Patient Stories

Your child will be cared for by one of the most accomplished teams of cancer predisposition experts in the world. We make sure your child and every member of your family get the highest level of support.

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Fax
Patient story

DICER1 Syndrome: Ellie’s Story

With a genetic disorder that increases her risk of developing tumors, Ellie is seen regularly at the Cancer Predisposition Program.
Patient story

WAGR Syndrome: Miranda’s Story

CHOP researchers have published the most comprehensive description of WAGR syndrome, which affects less than 450 people worldwide, including Miranda.
Finn
Patient story

Beckwith-Wiedemann Syndrome and Cancer: Finn’s Story

Diagnosed with a rare genetic condition that predisposed him to developing cancer, Finn spent the first four months of his life at CHOP, where he survived heart surgery, abdominal surgery, liver cancer and chemotherapy.
Patient story

Hereditary Neuroblastoma: Edie’s Story

After spending most of her life being treated for neuroblastoma, it seemed that 18-month-old Edie had run out of options. Her family turned to The Children’s Hospital of Philadelphia, where an experimental treatment changed the course of this little girl’s life.
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