Primary Ciliary Dyskinesia Center
Children with primary ciliary dyskinesia (PCD), a rare genetic disease, will find comprehensive treatment and follow-up care at the Primary Ciliary Dyskinesia Center at Children's Hospital of Philadelphia (CHOP).
Because symptoms of PCD can mimic many other lung problems, accurate diagnosis is key so your child will receive the care they need. Our team of PDC experts is setting standards for testing, diagnosis and treatment, all of which improve outcomes for children with PCD.
The PCD Center is one of several specialized centers within CHOP's Division of Pulmonary Medicine, which is consistently ranked among the top pulmonary programs in the country by U.S. News & World Report.
We are part of the PCD Foundation's Clinical and Research Centers Network (CRCN), a national collaborative network of centers committed to advancing knowledge of this disease through clinical research.
How we serve you
Our approach starts with confirming an accurate diagnosis using state-of-the-art testing and technologies. Since there are currently no standardized treatments for primary ciliary dyskinesia, we focus on creating a tailored care plan that meets the individual needs of each patient and family while using available research to guide your child's care.
Conditions we treat
Primary ciliary dyskinesia damages the tiny hair-like structures (cilia) in the lungs needed to clear the airways. Ongoing care strives to slow disease progression and minimize the number of pulmonary infections.
Meet your team
Our holistic team model includes nurses, social workers and physical therapists in addition to pediatric pulmonologists. Working together, our team makes sure your child receives the highest level of care and support.
Our locations
Access primary ciliary dyskinesia care at our Philadelphia hospital.
Our research
Research is ongoing at CHOP to better understand primary ciliary dyskinesia so we can continue to improve treatments and care for your child.
Primary Ciliary Dyskinesia Center resources
We have created resources to help you find answers to your questions and feel confident caring for your child.
Resources for professionals
Everything you need to support your patient’s health, created and updated by our CHOP community of experts.
Preparing for your child's appointment
As you are getting ready to bring you child to the PCD Center, it's helpful for the care team if you gather specific information and bring it with you.
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