Early recognition, treatment and management of CDH-related pulmonary hypertension is critical. Our team takes an early and aggressive approach to treatment, and our protocols have been extremely successful.
CHOP's specialized Pulmonary Hypoplasia Program provides ongoing developmental and medical assessments from infancy through adolescence, with the goal of looking beyond short-term surgical survival and providing long-term clinical care to improve quality of life.
Neonates with congenital diaphragmatic hernia (CDH) often require intensive treatment after birth and have prolonged hospitalizations, and may suffer a variety of complications after discharge. Comprehensive interdisciplinary follow-up care is critical for long-term well being.
The Pulmonary Hypoplasia Program at The Children’s Hospital of Philadelphia is committed to tracking outcomes of children with pulmonary hypoplasia in an effort to improve understanding and care. A recent review of neurodevelopmental outcomes at 5 years of age found that CDH survivors are at increased risk for developing emotionally reactive and pervasive developmental problems.