Comprehensive Vascular Anomalies Program (CVAP) Patient Stories
1 - 3 of 3
Reversing Severe Lymphatic Disorder Caused by Noonan Syndrome: Maria’s Story
Facing a future of recurring internal bleeding, Maria tried an experimental drug. It completely remodeled her lymphatic channels and stopped the bleeding.
Klippel-Trenaunay Syndrome: Maille’s Story
A condition that affects vein development caused Maille to undergo surgery on her leg, but nothing gets in the way of her passion for dance and trapeze.
From Struggling to Breathe to Finishing a 5K
Brenna first came to CHOP with a lymphatics condition so severe she could hardly function. A collaboration between lymphatics, genetics and oncology changed her life.