Timothy Estilow, OTR/L Timothy Estilow, OTR/L, is an occupational therapist on the outpatient team and New Jersey satellite sites team leader at The Children's Hospital of Philadelphia. Locations: Main Campus; Specialty Care, Virtua; Buerger Center for Advanced Pediatric Care Appointments and Referrals: 1-800-TRY-CHOP (1-800-879-2467) Background Tim Estilow, OTR/L, has been an Occupational Therapist at The Children's Hospital of Philadelphia since 2002. He provides outpatient-based therapy services, interdisciplinary specialty clinic consultations/evaluations, and participates in clinical research. His specialty practice includes the use of splinting, dynamic movement orthosis, and aquatic therapy interventions for patients with neuromuscular diseases. Tim has participated as an evaluator in clinical trials for CMT, DMD, SMA, MS, and other neuromuscular/neurological diseases. His goal is to maximize function in activities of daily living for patients with MS and other white matter diseases. Education and Training Additional TrainingInternship - The Children's Hospital of Philadelphia, Philadelphia, PA Board CertificationRegistered/Licensed Occupational TherapistUndergraduate DegreeBS - Thomas Jefferson University, Philadelphia, PA Titles and Academic Titles Occupational TherapistNew Jersey Satellite Sites Team Leader Departments and Services Occupational Therapy Neuromuscular ProgramLeukodystrophy Center Research Interests Outcome measures for children with neuromuscular disorders and rehabilitation of children with neuromuscular disorders Publications Papers2012 Burns, J., Ouvrier, R., Estilow, T. , Shy, R., Laurá, M., Eichinger, K., Finkel, R. S. (2012). Symmetry of foot alignment and ankle flexibility in paediatric Charcot–Marie–Tooth disease. Clinical Biomechanics, 27(7), 744-747. Burns, J., Ouvrier, R., Estilow, T., Shy, R., Laurá, M., Pallant, J. F., ... & Finkel, R. S. (2012). Validation of the Charcot–Marie–Tooth disease pediatric scale as an outcome measure of disability. Annals of neurology, 71(5), 642-652. Burns, J., Menezes, M., Finkel, R. S., Estilow, T., Moroni, I., Pagliano, E., Shy, M. E. (2013). Transitioning outcome measures: relationship between the CMTPedS and CMTNSv2 in children, adolescents, and young adults with Charcot‐Marie‐Tooth disease. Journal of the Peripheral Nervous System, 18(2), 177-180. Estilow, T., Kozin, S. H., Glanzman, A. M., Burns, J., & Finkel, R. S. (2012). Flexor digitorum superficialis opposition tendon transfer improves hand function in children with Charcot-Marie-Tooth disease: Case series. Neuromuscular Disorders, 22(12), 1090-1095. BooksChapters 2015 Ashworth, S, Estilow, T., Humpl, D Occupational Therapy Evaluation and Treatment in Kozin, S, Abzug, J, Zlotolow, D, Editors. The Pediatric Upper Extremity. New York: Springer Reference; 2015. pp.171-195. 2014 Ashworth, S., Estilow, T., Humpl, D. Occupational Therapy Evaluation and Treatment. In The Pediatric Upper Extremity (pp. 1-32). Springer New York. 2014. Editorial and Academic Positions Academic and Institutional Committees Charcot Marie Tooth Association of United States, Advisory Board Member The Inherited Neuropathy’s Consortium Pediatric Neuromuscular Clinical Research Group, Member Patient Experience Ratings About the Patient Experience Rating System The Patient Experience Rating is an average of all responses to the care provider related questions shown below from our nationally-recognized Press Ganey Patient Satisfaction Survey. Patients that are treated in outpatient or hospital environments may receive different surveys, and the volume of responses will vary by question. Responses are measured on a scale of 1 to 5 with 5 being the best score. The comments are submitted by patients and families and reflect their views and opinions. The comments are not endorsed by and do not reflect the views of Children’s Hospital of Philadelphia.