Cardiomyopathy Patient Stories

Naadir, 13, is recovering successfully from a heart transplant after four months on a ventricular assist device implanted at Children's Hospital of Philadelphia.

Lena suffered from a nearly fatal experience as a baby. She was saved by her ambulance team and by the Cardiac Center team at CHOP.

Lily, 8, has her complicated heart problems including pulmonary hypertension under control thanks to Children’s Hospital of Philadelphia.

A cardiac program enabled brothers to learn they were at risk of a genetic heart condition. Recommended lifestyle changes could save their lives.

Joe had a near-fatal incident from cardiomyopathy. He was back on the soccer field six months after a heart transplant at Children’s Hospital of Philadelphia. 

It all started when Joy told her mom, Heather, that she was having chest pains. Heather’s family history of hypertrophic cardiomyopathy prompted her to schedule an appointment at the Cardiac Center, where both Joy and her sister, Ryann, were found to have the gene for cardiomyopathy

Reid was diagnosed with hypertrophic cardiomyopathy shortly after he was born and had a defibrillator implanted at age 12.

Chris was diagnosed with a dilated cardiomyopathy when he was 15 years old and underwent a successful heart transplant at CHOP.