Congenital Heart Disease Patient Stories
1 - 9 of 9
Strength in Service: Nicole’s Story
An active philanthropist and longtime advocate for CHD, Nicole reflects on her journey navigating a child’s CHD.
Double Outlet Right Ventricle (DORV): Michael's Story
Michael, 3, had a series of heart surgeries at Children’s Hospital of Philadelphia (CHOP) to correct a rare heart defect: double outlet right ventricle.
Heterotaxy Syndrome: Julia’s Story
An innovative procedure corrected a problem in Julia’s circulatory system. Inspired by the nurses at CHOP, Julia is in school to become a nurse herself.
Coronary Artery Anomaly: Anthony's Story
Anthony's family turned to the Coronary Anomaly Management Program at CHOP, where a team is leading the search for answers about a little-understood heart defect called anomalous aortic origin of a coronary artery and other coronary artery anomalies.
Coronary Artery Anomaly: Quinn's Story
Quinn was diagnosed with a type of coronary artery anomaly called anomalous left coronary artery from the pulmonary artery (ALCAPA) and treated by the Cardiac team at CHOP, giving him a better chance at survival.
Double Inlet Left Ventricle: Abby's Story
Abby was diagnosed with double inlet left ventricle, a severe heart defect, and underwent several surgeries at CHOP's Cardiac Center.
Tetralogy of Fallot: Ben's Story
When Diana and Corey learned their unborn baby had tetralogy of Fallot, they came to CHOP's Fetal Heart Program to better understand the diagnosis, develop a birth plan and prepare for their baby’s open heart surgery.
Transposition of the Great Arteries: Joanna’s Story
Joanna has been a patient of the Cardiac Center at CHOP all her life. In 2010, she turned to her cardiac team again as she prepared for another major event in her life: her first pregnancy.
Ventricular Septal Defect: Bridget's Story
Learn about the medical care Bridget received at the Philadelphia Adult Congenital Heart Center prior to her sons’ birth, and about her experience with peripartum cardiomyopathy after giving birth.