Skip to main content

Patient stories

Cornelia de Lange Syndrome Patient Stories

Patient story

Cornelia de Lange Syndrome: Megan’s Story

As a child with Cornelia de Lange syndrome, little was known about how the disorder would affect Megan Ramsey’s long-term functioning, but she confronts every challenge with an indomitable spirit.
Patient story

Cornelia de Lange Syndrome: Connor’s Story

When Connor Feehan was diagnosed with Cornelia de Lange syndrome, his family learned that living with this disorder is about adapting, adjusting, and expecting the best. The Children’s Hospital of Philadelphia is helping them do that.
A mother and daughter are hugging

Explore all our Resources

Jump back to top