Epilepsy Patient Stories

Diego had his first seizure in sixth grade. It began with a sudden, unusual sensation (known as an aura). The next thing he knew, he was in an ambulance.

Much has been learned about hyperinsulinism/hyperammonemia since Daniel first had severe low blood sugar as a baby. A new clinic as CHOP can help improve symptoms.

Thanks to the support of his adoptive parents and the relentless commitment of his care team at Children’s Hospital of Philadelphia, 5-year-old Colton has come a long way since suffering traumatic brain injury as a newborn.

CHOP’s NJTACC helps families find practitioners with an understanding of how to provide effective care for teens with special needs.

Adam’s hyperinsulinism/hyperammonemia wasn’t well controlled until he came from Chicago to CHOP. Now he’s participating in research to help find a better treatment for HA.

AJ’s life was relatively uncomplicated until age 14, when he began to experience unpredictable seizures and received a life-changing diagnosis of epilepsy. Thanks to the combination of a small, battery-powered device surgically implanted into his brain and an oral medication, he is now seizure-free.

 State-of-the-art brain surgery at CHOP reduced Emily’s seizures from 90 per day to zero — it's been life changing for her and her family.

With support from CHOP’s Dietary Treatment Program, Kayla is following a modified ketogenic diet and living her busy teenage life seizure-free.

This holiday season is extra special to Evan's mom: her 7-year-old survived a life-threatening medical emergency and is now home with his family.