Individuals and families continue to face barriers in diagnosis and coordinated management of the complex conditions that arise as a consequence of leukodystrophy. This virtual symposium will provide up-to-date information on the best diagnostic and disease management practices, with an emphasis on how to provide comprehensive patient- and family-centered care for the various clinical conditions frequently seen in children with leukodystrophy through a coordinated approach. This symposium is ideal for physicians who serve as the primary care medical home for patients with leukodystrophy as well as other pediatric specialists who play an essential role in delivering coordinated care, including pediatric gastroenterologists, nutritionists, pulmonologists, respiratory therapists, speech-language pathologists and orthopedists.
Topics will include
- Leukodystrophy for the primary care physician
- Gastrointestinal and feeding issues
- Respiratory considerations
- Tone for the non-neurologist
- Orthopaedic complications
- Palliative care
- Multidisciplinary care planning and management
- Explore the role of the primary care provider in caring for children with leukodystrophy.
- Review common non-neurologic complications that occur in children with leukodystrophy.
- Discuss how the care team and hospital system can help coordinate care for children with leukodystrophy.
- Sahar A. Al Baroudi, MD
- Jackelyn Cona, MS, CCC-SLP
- Morgan Congdon, MD, MPH
- Julianne Curry, MS, CCC-SLP
- Sally Evans, MD
- Annique Hogan, MD
- Jen Hwang, MD, MHS
- Nicole Jaffe, MD
- Laura Rose Musheno, MD
- Sonia Patel, MD
- Brynith Stocker (parent)
- Sarah Stoney, MSW, LSW
Anyone can attend the symposium for free. Physicians who pay a $40 processing fee can claim up to 3 AMA PRA Category 1 Credit(s), commensurate with the extent of their participation in the activity. Attendees who do not want to claim CME credit can register and attend this symposium at no cost.
ACCME Accreditation Statement: Children’s Hospital of Philadelphia is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.
AMA Credit Designation Statement: Children's Hospital of Philadelphia designates this live activity for a maximum of 3.25 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.