Transitioning to Adult Cystic Fibrosis Care: Devon’s Advice
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The Cystic Fibrosis Center at Children’s Hospital of Philadelphia (CHOP) has been like a second home for Devon since she was diagnosed with cystic fibrosis (CF) at a year old. Now 21, she has made the transition to adult care at the Hospital at the University of Pennsylvania.
Devon was initially nervous about leaving the CF Center at CHOP, but thanks to preparation and supportive care teams, she was relieved to discover that the move was seamless. Wanting to reassure other kids with CF who are nervous about aging out of CHOP, Devon offers the following tips for patients with cystic fibrosis transitioning to adult care:
Devon has one more piece of advice. Before completing her transition to adult care, she made a final appointment at the CF Center at CHOP to say her goodbyes. It was an emotional day, bidding farewell to the healthcare professionals who had cared for her for most of her life. But it gave her the sense of closure that she needed to take this important and necessary step forward into managing her own care.