Cardiac Kids Developmental Follow-up Program Patient Stories
1 - 10 of 12
Lifesaving Care for HLHS: Thomas’ Story

Born with hypoplastic left heart syndrome, Thomas had a 50% chance of making it to his first reconstructive heart surgery. CHOP helped him beat those odds.
Hypoplastic Left Heart Syndrome: Michael's Story

Michael, 5, is meeting all his developmental milestones after surgeries for a severe heart defect. He was closely monitored by the Cardiac Kids Developmental Follow-up Program at CHOP.
Tetralogy of Fallot: Cooper's Story

Two-year-old Cooper had overcome open heart surgery, angioplasty and more, but he wasn't talking much and that concerned his parents.
Tetralogy of Fallot (TOF): Alissa’s Story

When Alissa was a baby, she underwent heart surgery at Children’s Hospital of Philadelphia to treat tetralogy of Fallot (TOF), a congenital heart defect.
Hypoplastic Left Heart Syndrome: Jeremy's Story

Jeremy was born with hypoplastic left heart syndrome (HLHS). After a series of three reconstructive surgeries, he’s now an outgoing 5-year-old.
Interruption of the Aortic Arch: Beyah’s Story

Beyah, 2, has come a long way since having lifesaving open-heart surgery at Children’s Hospital of Philadelphia when she was just a few days old.
Double Outlet Right Ventricle (DORV): Michael's Story
Michael, 3, had a series of heart surgeries at Children’s Hospital of Philadelphia (CHOP) to correct a rare heart defect: double outlet right ventricle.
Heart Malformations: Brynn's Story

A series of surgical procedures at Children’s Hospital of Philadelphia corrected Brynn’s rare combination of heart defects.
Double Inlet Left Ventricle: Abby's Story

Abby was diagnosed with double inlet left ventricle, a severe heart defect, and underwent several surgeries at CHOP's Cardiac Center.
Hypoplastic Left Heart Syndrome: The Jackley and Lihn Families' Story

Two families with children diagnosed with HLHS find support and friendship through their shared experiences at CHOP's Cardiac Center.