Center for Thoracic Insufficiency Syndrome

The Center for Thoracic Insufficiency is the first national, multidisciplinary program devoted solely to the treatment of thoracic insufficiency syndrome. This syndrome is most often caused by progressive scoliosis and severe rib fusion, or conditions such as Jeune syndrome (spondylocostal dysplasia), Jarcho-Levin syndrome, spinal muscular atrophy (SMA), cerebrocostomandibular syndrome, arthrogryposis and VATER syndrome.

Severe Infantile Scoliosis and Rib Fusion: Jonathen’s Story

Our Team

Our team includes clinical and research experts from orthopaedics, pulmonology, radiology, genetics and more. Together, the team develops an individual treatment plan for your child.