Center for Thoracic Insufficiency Syndrome Patient Stories
1 - 10 of 10
Early-onset Scoliosis in an Infant: Tristan’s Story
Diagnosed with early-onset scoliosis at 5 months old, Tristan was treated with serial body casting, an innovative therapy that gradually straightens spinal curves.
Jeune Syndrome and VEPTR Surgery: Isla’s Story
James and Rachel traveled 3,000 miles to seek medical treatment for their daughter's TIS. CHOP is one of only a few hospitals in the nation that offer VEPTR surgery.
Severe Infantile Scoliosis and Rib Fusion: Jonathen’s Story
An innovative device, developed by one of CHOP’s world-renowned surgeons, gave Jonathen’s family hope for a better future.
Thoracic Insufficiency Syndrome and Congenital Scoliosis: Keegan's Story
Born with severe chest and spine deformities, Keegan's future looked dim until his parents found Robert M. Campbell, MD, and the innovative VEPTR device he created.
Thoracic Insufficiency Syndrome and Early-Onset Scoliosis: Salma's Story
Diagnosed with severe scoliosis and thoracic insufficiency syndrome, Salma traveled from the Middle East to Children's Hospital for life-saving VEPTR treatment.
Thoracic Insufficiency Syndrome and Spina Bifida: Landon’s Story
Landon's life has been transformed after his VEPTR surgery. His lung function has improved; he has enough energy to explore his surroundings,
Thoracic Insufficiency Syndrome: Arwa's Story
Mubarak and Khairiah Alqahtani traveled from Saudi Arabia to seek lifesaving care at Children's Hospital of Philadelphia for their 18-year-old daughter, Arwa, who suffered from a rare disease.
VEPTR Implants to Treat Jarcho-Levin Syndrome: Isla’s Story
After being told their daughter might not live past age 3, Isla’s parents were determined to look for a glimmer of hope, and they found it at CHOP.
VEPTR Surgery for Jeune Syndrome: Madden's Story
Born with no hope for survival, a specialized team at CHOP helped Madden survive and thrive longer than anyone thought possible.
VEPTR Surgery for Skeletal Dysplasia: Grace's Story
A lifesaving treatment at CHOP gave Grace a chance at life, and her family hope for a future with their daughter.