Wyss/Campbell Center for Thoracic Insufficiency Syndrome Patient Stories

When their foster daughter faced insurmountable odds, a Delaware couple turned to CHOP for help with complications from spinal muscular atrophy.

Skeletal dysplasia and thoracic insufficiency syndrome led Klaire to have severely underdeveloped lungs. Expert treatment at CHOP has helped her thrive.

A decade after Eli’s rare neuromuscular condition was first diagnosed at CHOP, he returned for successful surgical treatment during a global pandemic.

When Gavin was born, doctors didn’t expect him to survive, but thanks to a large team of specialists and a coordinated spine surgery, he’s defying the odds.

When Bubba was born with serious health issues, his family turned to CHOP for life-saving treatment from Jeune syndrome and thoracic insufficiency syndrome.

A CHOP occupational therapist's keen observation led to Sophia's neuromuscular scoliosis diagnosis, and supportive treatment to enhance her quality of life.

Surgery in a child with spinal muscular atrophy (SMA) has eliminated life-threatening respiratory infections by straightening the spine and separating the ribs.

Saquon Barkley's shoes tell a story about his niece Amirah, who has a rare genetic condition and is being treated at Children's Hospital of Philadelphia.

A lifesaving treatment at CHOP gave Grace a chance at life, and her family hope for a future with their daughter.

Born with no hope for survival, a specialized team at CHOP helped Madden survive and thrive longer than anyone thought possible.