Center for Thoracic Insufficiency Syndrome Patient Stories

1 - 10 of 12

22q Deletion Syndrome: Amirah's Story

Saquon Barkley's shoes tell a story about his niece Amirah, who has a rare genetic condition and is being treated at Children's Hospital of Philadelphia.

Thoracic Insufficiency Syndrome: Arwa's Story

Mubarak and Khairiah Alqahtani traveled from Saudi Arabia to seek lifesaving care at Children's Hospital of Philadelphia for their 18-year-old daughter, Arwa, who suffered from a rare disease.


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