Center for Thoracic Insufficiency Syndrome Patient Stories

1 - 10 of 12

22q Deletion Syndrome: Amirah's Story


Saquon Barkley's shoes tell a story about his niece Amirah, who has a rare genetic condition and is being treated at Children's Hospital of Philadelphia.

Thoracic Insufficiency Syndrome: Arwa's Story

Arwa Thoracic Insufficiency

Mubarak and Khairiah Alqahtani traveled from Saudi Arabia to seek lifesaving care at Children's Hospital of Philadelphia for their 18-year-old daughter, Arwa, who suffered from a rare disease.