Congenital Hyperinsulinism Center Patient Stories

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GCK Hyperinsulinism: Nico’s Story


Being part of a clinical trial as a patient of the HI Center research gave Nico the independence to be a normal kid and still safely manage his hyperinsulinism.


Insulinoma: Leilani’s story

Leilani wearing a protective mask

When doctors in Florida struggled to diagnose Leilani’s rare illness, her parents pushed to bring her to Children’s Hospital of Philadelphia, where she was cured.