Congenital Hyperinsulinism Center Patient Stories

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Congenital Hyperinsulinism: Charlotte's Story

charlotte

Charlotte's family came from California searching for answers about her persistently low blood sugar levels. They found answers and support at CHOP's Congenital Hyperinsulinism Center.

Congenital Hyperinsulinism: Odinn’s Story

Óðinn Orri with his brothers

Óðinn Orri Sævarsson was born with a potentially life-threatening disease rarely seen in Iceland, congenital hyperinsulinism (HI). Quick action and a team effort between Icelandic specialists and CHOP's International Patient Services got Óðinn to CHOP for treatment, where he was cured.

Diffuse Hyperinsulinism: Max's Story

max

Frustration and fear led Max’s parents to bring him across the country to CHOP's Congenital Hyperinsulinism Center. After surgery to treat his diffuse hyperinsulinism, he's thriving.

Diffuse Hyperinsulinism: Rianna's Story

Rianna was diagnosed with diffuse hyperinsulinism when she was 10 days old. She was referred to the Congenital Hyperinsulinism Center at The Children's Hospital of Philadelphia for treatment.

Focal Hyperinsulinism: Lainie's Story

lainie

Lainie travelled from Michigan to the Congenital Hyperinsulinism Center at The Children's Hospital of Philadelphia for a cure for her focal hyperinsulinism.

Focal Hyperinsulinism: Mackenzie's Story

Read Mackenzie's story about her and her family's experience with focal hyperinsulinism. Learn about her diagnosis and treatment at the Congenital Hyperinsulinism Center at The Children's Hospital of Philadelphia.

Focal Hyperinsulinism: Nathaniel's Story

Born full-term after a healthy pregnancy, Nathaniel began developing low blood sugars — down to 20 mg/dL — a few hours after birth. His family turned to CHOP's Congenital Hyperinsulinism Center for help.


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