Congenital Hyperinsulinism Center Patient Stories

1 - 10 of 27

Congenital Hyperinsulinism: Alaya's Story

Alaya and Dr. Adzick

Alaya's family traveled from North Carolina seeking the expertise of CHOP’s Congenital Hyperinsulinism Center. She became the 500th baby to have a pancreatectomy at CHOP.

Congenital Hyperinsulinism: Odinn’s Story

Óðinn Orri with his brothers

Óðinn Orri Sævarsson was born with a potentially life-threatening disease rarely seen in Iceland, congenital hyperinsulinism (HI). Quick action and a team effort between Icelandic specialists and CHOP's International Patient Services got Óðinn to CHOP for treatment, where he was cured.

HNF1A-hyperinsulinism: Bryce's Story

Baby Boy Bryce with Family

Bryce was diagnosed with hyperinsulinism at 3 weeks old. Bryce’s treatment is a bit more complicated because he has a rare form of HI called HNF4A HI, named for the defective gene responsible.