The rare is commonplace at CHOP, and for children with extremely low blood sugar from hyperinsulinism, that expertise changes lives, as Ben’s family learned.

Congenital hyperinsulinism is rare — 1 in 50,000 births — and Paige had a rare type of HI. But CHOP’s expertise allowed her to be cured.

The combination of a barking dog, an alert local endocrinologist, and the experts at CHOP’s Congenital Hyperinsulinism Center gave Adriana the best result possible: a cure.

Alaya's family traveled from North Carolina seeking the expertise of CHOP’s Congenital Hyperinsulinism Center. She became the 500th baby to have a pancreatectomy at CHOP.

Siblings Lily and Landon were both treated for congenital hyperinsulinism at Children's Hospital of Philadelphia. 

When her daughter's HI/HA was well managed, this mom turned her attention to advocating for her child's needs at school.

Óðinn Orri Sævarsson was born with a potentially life-threatening disease rarely seen in Iceland, congenital hyperinsulinism (HI). Quick action and a team effort between Icelandic specialists and CHOP's International Patient Services got Óðinn to CHOP for treatment, where he was cured.

Eimy was diagnosed with a newly recognized type of HI, a transient form called HNF1A-hyperinsulinism. Treatment for HNF HI can be tricky as the “just right” dose of diazoxide continues to fluctuate as children grow.

I told them CHOP was the best place for Dante to go … When I need their expertise, they’re there.

Cooper traveled from Rhode Island to CHOP for treatment of Beckwith-Wiedemann syndrome and hyperinsulinism. Now 2 1/2 years old, he is happy, active and intellectually on target.