Congenital Hyperinsulinism Center Patients Stories Listing

Our team of pediatric endocrinologists, surgeons, radiologists, pathologists, anesthesiologists, advanced practice nurses, nurses, social workers, genetic counselors, psychologists, researchers, speech and feeding therapists, and dietitians work together to provide specialized and seamless care.

Appointments
Referrals
Patient story

Congenital Hyperinsulinism: Alaya's Story
Alaya's family traveled from North Carolina seeking the expertise of CHOP’s Congenital Hyperinsulinism Center. She became the 500th baby to have a pancreatectomy at CHOP.
Patient story

Congenital Hyperinsulinism: Odinn’s Story
Óðinn Orri Sævarsson was born with a potentially life-threatening disease rarely seen in Iceland, congenital hyperinsulinism (HI). Quick action and a team effort between Icelandic specialists and CHOP's International Patient Services got Óðinn to CHOP for treatment, where he was cured.
Emily Patient
Patient story

HNF1A-hyperinsulinism: Eimy's Story
Eimy was diagnosed with a newly recognized type of HI, a transient form called HNF1A-hyperinsulinism. Treatment for HNF HI can be tricky as the “just right” dose of diazoxide continues to fluctuate as children grow.