Goldenhar Syndrome: Emily’s Story
Born with tetralogy of Fallot and Goldenhar syndrome, Emily has endured dozens of surgeries in the past 14 years, and her mission is to teach kindness and acceptance.
Craniofacial Program Patient Stories
Read stories about patients who have been cared for by the Craniofacial Program.
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Goldenhar Syndrome & Von Willebrand Syndrome: Aidan's Story
Aidan was born with Goldenhar syndrome and Von Willebrand syndrome, two rare genetic conditions that need expert medical management. He receives care from The Children's Hospital of Philadelphia at CHOP Specialty Care Centers in New Jersey.
Tetralogy of Fallot and Craniosynostosis: William's Story
William was born with tetralogy of Fallot, a heart condition that requires open heart surgery shortly after birth, and had surgery at CHOP.