About the Cystic Fibrosis Center
The Cystic Fibrosis Center is an integral part of the Division of Pulmonary Medicine at The Children’s Hospital of Philadelphia, providing integrated, multidisciplinary care for children with cystic fibrosis and their families. Our clinical services range from evaluation and diagnosis to treatment, including emphases on:
- Promoting normal growth and development
- Slowing the progression of cystic fibrosis (CF) disease
- Prevention and treatment of complications
- Helping the family integrate even the most complex care regiments into their daily life
- Education of both the family and community care providers
The interdisciplinary healthcare team, consisting of pediatric pulmonologist, endocrinologists, gastroenterologists, nutritionists, advanced practice nurses, physical therapists and social workers, meets regularly to assess the clinical, educational and psychosocial needs of the family and to plan and evaluate care provided. Additional expertise from genetic counselors, interventional radiologists, physical therapists, pharmacologists, and respiratory technologists is available. Transplant surgeons and their teams provide the capability for both liver and lung transplants for those patients who are candidates.
The Cystic Fibrosis Center also offers an adult program at the Hospital of the University of Pennsylvania. Patients are transitioned from the pediatric program at CHOP or referred from the regional practices in the tristate area. The primary team consists of pulmonologists, registered nurses, physical therapists, respiratory therapists, a dietician and a social worker.