Division of Ophthalmology Patient Stories
1 - 9 of 9
Saethre-Chotzen Syndrome and Encephalocele: Elana’s Story
Elana was born with abnormalities of her skull requiring surgery. When her parents came to CHOP, ‘We knew it was going to be OK.’
Logan's Journey with Rare Syndromes and Speech Development at CHOP
Logan battled Sturge-Weber and Klippel-Trenaunay syndromes, and has triumphed over speech difficulties with the support of CHOP specialists.
Neurofibromatosis 1: Carlee’s Story
Carlee, 4, receives treatment for the optic pathway tumor that caused vision loss. But she’s also gotten extensive psycho-social support.
Pseudotumor Cerebri Syndrome: Lily’s Story
With pseudotumor cerebri syndrome, the symptoms are real even though the tumor is not. Lily relied on her CHOP doctors and her own perseverance to combat the condition.
Best Way to Treat Amblyopia? Follow Doctor’s Orders: Jayden’s Story
When a CHOP optometrist and a child’s family work together, it’s possible to correct lazy eye, even with a late diagnosis. Education and compliance are key.
Thymectomy for Myasthenia Gravis: Michaela’s Story
Diagnosed with myasthenia gravis, which causes eye drooping and double vision, Michaela is grateful for the team at CHOP for helping her see the world with both eyes wide open.
Family Justice Partnership: Camren's Path to SSI Benefits
A CHOP ophthalmologist and Family Justice Partnership made sure Camren, who is legally blind, received the disability benefits he deserved.
Gene Therapy for Inherited Blindness: Hannah’s Leber Congenital Amaurosis Story
Diagnosed with Leber congenital amaurosis as a baby, Hannah was on a path to going blind until gene therapy at Children’s Hospital restored her sight.
Tajh’s Story: Medical and Surgical Treatment of Myasthenia Gravis
When medicine alone couldn’t successfully control Tajh’s myasthenia gravis symptoms, surgery to remove his thymus offered the best chance of remission.