Division of Pulmonary and Sleep Medicine Patient Stories

Care from CHOP’s Rare Lung Disease Center means a “scary” rare lung disease diagnosis hasn’t kept Reese off the basketball and volleyball courts or the softball field.

Preemie twins with chronic infant lung disease find the specialized care they need in the Post-preemie Lung Disease Clinic at Children’s Hospital of Philadelphia.

Amelia’s journey began with a rare and complex birth defect. Thanks to expert care at Children’s Hospital of Philadelphia, she has overcome incredible challenges.

A 12-year-old with recurrent respiratory infections and sleep apnea finds the expert care she needs at Children’s Hospital of Philadelphia’s Division of Pulmonology and Sleep Medicine.

Two rare diseases lead to an unexpected genetic diagnosis of primary ciliary dyskinesia for a little boy at Children’s Hospital of Philadelphia.

Ada, 6, was healthy when she was born. She hit her early milestones with ease. As soon as Ada turned one, however, her health suddenly took a turn for the worse.

After being diagnosed with a rare type of tumor in her airway, Peyton came to CHOP for surgery that successfully saved part of her right lung.

Bennett’s breathing easy after the tumor blocking his lung was removed not with surgery, but with cutting-edge techniques, treatments and trial medication.

Born at 26 weeks, Leila’s lungs failed to develop. Specialty care during her CHOP stay and after helped her breathe on her own and her family cope.

CHOP’s diagnosis and treatment of a rare lung disease solved a medical mystery for Jacob. Shared care with his Virginia pulmonologist is keeping him healthy.