Fetal Heart Program Patient Stories
1 - 10 of 38
Stephanos’s Story

Stephanos was diagnosed with a congenital heart defect in utero and had three surgeries before he turned 3. Thanks to the Fetal Heart Program at Children’s Hospital of Philadelphia, Stephanos is now a 6-year-old who loves Legos and sports, and swings a mean golf club.
Lifesaving Care for HLHS: Thomas’ Story

Born with hypoplastic left heart syndrome, Thomas had a 50% chance of making it to his first reconstructive heart surgery. CHOP helped him beat those odds.
Transposition of the Great Arteries: Mazan’s Story

When their son is born with a complex congenital heart defect, a Lehigh Valley family turns to CHOP for care.
The World’s Smallest Pacemaker: Cameron’s Story

An adapted device and minimally invasive heart surgery give a newborn with heart block the boost he needs.
The Beauty of Different: Sasha’s Story

From gracing a magazine cover to writing for one, this former Fetal Heart Program patient aims to shake up the beauty industry and its view of scars.
Heart Surgery During the Pandemic: Caroline’s Story

In the middle of the COVID-19 pandemic, one Va. family chose CHOP’s Cardiac Center for their daughter’s heart repair. Find out why.
Heart Transplant: Tenlee's Story

Tenlee was 3 days old when her family learned reconstructive surgery wouldn't be enough to save her life — she needed a new heart.
Pulmonary Arterial Venous Fistula: Amelia's Story

Born with a rare heart defect, Amelia received innovative, life-saving treatment at Children's Hospital of Philadelphia.
Double Inlet Left Ventricle and Interrupted Aortic Arch: Hailee's Story

After staged reconstructive heart surgery as a baby, doctors discovered Hailee's heart was beating too slowly and implanted a pacemaker to steady the rhythm.
Hypoplastic Left Heart Syndrome: Siena's Story

Born with multiple ventricular septal heart defects, Siena overcame many challenges during her first year. Now 14 months old, she's back home and reaching new milestones.