Pediatric Liver Center Patient Stories

1 - 9 of 9

Biliary Atresia and Liver Transplant: Mya's Story


When Mya was an infant, her parents, Lissa and Jeff, learned she had biliary atresia and would eventually need a liver transplant. Here, Lissa shares the story of her daughter’s journey to a transplant at CHOP.

Heterotaxy Syndrome: Laila's Story

Laila Kramer was 8 years old when her family learned she was born with heterotaxy syndrome, a rare birth defect where many of her internal organs are reversed from their normal positions. When she contracted a serious liver infection, she got help from CHOP experts.

Liver Transplant: Carter's Story

carter and his mother

Born with ornithine transcarbamylase (OTC) deficiency, a rare metabolic disorder, Carter was 9 months old when he received a life-saving liver transplant at CHOP.

Liver Transplant: Jacob's Story

Jacob was diagnosed with fulminant hepatic failure — liver failure with a very rapid onset — and received a liver transplant at Children's Hospital of Philadelphia (CHOP).

Liver Transplant: Josie’s Story


Josie Crawn received a liver transplant from a deceased donor when she was baby. A few months later, her family met her organ donor's family.

Biliary Atresia: Chris' Story

Chris has come a long way in the past year since he was diagnosed with biliary atresia, a liver disease. He has been helped by the Biliary Atresia Program at Children's Hospital of Philadelphia (CHOP).