Hemophilia and Bleeding Disorders Program
The Hemophilia and Bleeding Disorders Program at The Children’s Hospital of Philadelphia is a center of excellence for the diagnosis, treatment and prevention of bleeding in children and adolescents with:
- Hemophilia
- Von Willebrand disease
- Platelet disorders
- Other bleeding disorders
Established in 1973, the Hemophilia and Bleeding Disorders Program provides families with a comprehensive, family-centered approach to care. The emphasis of our team is education and developing an individualized care plan for your child to prevent complications of bleeding and treatment.
Our team includes physicians, nurses, social work, physical therapists and researchers. We collaborate closely with patients and families, encouraging you to become active members of the care team. We provide education to your family so you can provide treatment or your child can provide self-treatment at home when appropriate. Our goal is to promote optimal health for all children and adolescents with bleeding disorders.
Our collaboration with families begins when your child is diagnosed with a bleeding disorder, and ends when your child has successfully transitioned to an adult healthcare provider decades later.
Treatment for acute bleeding episodes is provided five days a week in CHOP’s Hemostasis and Thrombosis Center. We work with your family to ensure prompt treatment and to minimize the need for your child to visit the Emergency Department.
An additional emphasis for families with inherited bleeding disorders is a focus on genetic testing, genetic education and outreach to potential family members who may be at-risk for inheriting or passing on bleeding disorders.
CHOP's Hemophilia Treatment Center (HTC) is a part of the national network of federally funded HTCs in the U.S. and previously served as the Core Center for the 16 HTCs in the Mid-Atlantic Region, 15 years under the leadership of Regina Butler, RN-BC. As a Core Center, CHOP oversaw the services provided by the Mid-Atlantic Region III HTCs and collaborated with the Maternal and Child Health Bureau and CDC to improve treatment and support for people with hemophilia and other inherited bleeding and clotting disorders. The Core Center has been transferred to Lehigh Valley Hospital.
Together, we have successfully collaborated in the evaluation and implementation of expert services and serve as a national resource on bleeding and clotting disorders.