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Pediatric Neuro-Oncology Program Patient Stories

Read stories about patients who have been cared for by the Pediatric Neuro-Oncology Program.

Existing patients or family members
New patients, referrals and second opinions
Patient story

Hypothalamic Glioma: Silas’s Story

After an inoperable brain tumor diagnosis, Silas found hope at CHOP, where innovative insight and precise, collaborative care changed the course of his young life.

Patient story

Panhypopituitarism: Joe’s Story

Removing Joe’s brain tumor at age 5 meant he also lost his pituitary gland. Experts at CHOP’s Neuroendocrine Center have kept him on track toward adulthood ever since.

Patient story

Aaron’s Story: Surgery, Chemotherapy and Stem Cell Transplant for Medulloblastoma

When Aaron was 4, he was suddenly diagnosed with a brain tumor and had to undergo seven months of arduous treatment. His family will never forget the teams in neurosurgery, oncology, nursing and child life — and the Phillies and their South Jersey community — all of whom lifted Aaron up throughout his journey at CHOP.

Patient story

Surgery for a Brain Tumor: Julia's Story

While Julia’s diagnosis of a brain tumor was a shock to her family, the location and type of tumor meant surgery at CHOP was the only treatment she needed.

Patient story

Brain Tumor: Devon’s Story

Devon underwent surgery, chemotherapy and proton therapy for a brain tumor the size of a softball. Within months, she started college and made the Dean’s List.  

Patient story

Neurofibromatosis Type 1: Conor’s story

Conor, 16, and his parents have been traveling to CHOP from South Carolina several times a year since he was an infant for NF1 treatment and clinical trials.

Patient story

Neurofibromatosis 1: Carlee’s Story

Carlee, 4, receives treatment for the optic pathway tumor that caused vision loss. But she’s also gotten extensive psycho-social support.

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