Brain Tumor Program Patient Stories
1 - 10 of 20
Neurofibromatosis Type 1: Conor’s story

Conor, 16, and his parents have been traveling to CHOP from South Carolina several times a year since he was an infant for NF1 treatment and clinical trials.
Neurofibromatosis 1: Carlee’s Story

Carlee, 4, receives treatment for the optic pathway tumor that caused vision loss. But she’s also gotten extensive psycho-social support.
Medulloblastoma and Kawasaki Disease: Gabby’s Story

"CHOP is so great because they support the whole family," says Gabby's dad, Paul.
Proton Therapy for Relapsed Craniopharyngioma: Elena's Story

When her benign brain tumor came back, Elena and her family traveled from Ohio to CHOP for 39 rounds of proton therapy.
Hepatoblastoma and Medulloblastoma: Justin’s story

Justin, 8, is a happy kid who loves video games and his scooter. He has survived cancer twice.
Yoga for Cancer Coping: Quinn’s Story

Yoga classes offered by the Integrative Health Program at CHOP helped Quinn and her family cope with her cancer diagnosis.
Hypothalamic/Optic Pathway Glioma NF1: Abby’s Story

When Abby was a toddler, she was diagnosed with a disorder that causes tumors and has been receiving treatments at CHOP. Abby is a Patient Ambassador for the 2016 Parkway Run & Walk. Read about her amazing efforts to help other kids undergoing chemotherapy.
Intracranial Germinoma: Aaron’s Story

In 2015, 17-year-old Aaron was diagnosed with two brain tumors. Despite a cancer diagnosis, he managed to stay on track at school and receive his diploma in June.
Brain Tumor: Liam's Story

It all started when he fell off a trampoline at a friend’s birthday party. Concerns about a possible concussion soon gave way to more shocking news: Liam had a brain tumor.
Astrocytoma: Grayson's Story

Grayson has an astrocytoma on his brain stem. It is the type of tumor that can become almost a chronic disease — it may never disappear, but the goal of treatment is to keep it stabilized.