Neuroscience Center Patients Stories Listing

At the Neuroscience Center, you have access to more than 250 highly specialized clinicians with advanced training and experience in the diagnosis, management and surgical treatment of all types of neurological disorders.

Neurology
Neurosurgery
Patient story

Gene Therapy for Duchenne Muscular Dystrophy: Cash’s Story
Children’s Hospital of Philadelphia now offers the first-ever gene therapy treatment for Duchenne Muscular Dystrophy (DMD) to patients like 6-year-old Cash. This breakthrough treatment slows the progression of symptoms and can improve strength and endurance for patients with DMD.
Patient story

Alexandria’s Story: Burr Hole Hemispherotomy for Seizures Caused By Perinatal Stroke

Alexandria was born at Pennsylvania Hospital, the nation’s first hospital, located in downtown Philadelphia. Everything seemed fine just after her C-section delivery, but within 24 hours of her birth, her mother, Kacy, noticed Alexandria’s eye twitching. She pointed it out to a nurse who brought in a neonatologist to evaluate the newborn. The neonatologist said the twitch was, in fact, a seizure.
Patient story

Anna’s Story: Playing a Role in Research Advances for Friedreich’s Ataxia
Since their first experience at CHOP in 2015, Anna’s parents have felt welcomed and supported by the team in CHOP’s Friedreich’s Ataxia Program. Team members go out of their way to make their daughter feel comfortable and cared for, and they have a sincere commitment to providing care that takes the whole child into account.
Patient story

Aaron’s Story: Surgery, Chemotherapy and Stem Cell Transplant for Medulloblastoma
When Aaron was 4, he was suddenly diagnosed with a brain tumor and had to undergo seven months of arduous treatment. His family will never forget the teams in neurosurgery, oncology, nursing and child life — and the Phillies and their South Jersey community — all of whom lifted Aaron up throughout his journey at CHOP.