Neuroscience Center Patient Stories
21 - 30 of 53
Diego’s Story: Medical Management of Epilepsy Seizures and Transition to Adult Care
Diego had his first seizure in sixth grade. It began with a sudden, unusual sensation (known as an aura). The next thing he knew, he was in an ambulance.
Hassani’s Story: Hemispherotomy to Control Seizures from Hemimegalencephaly
Learning that their child has a brain condition was a traumatic experience for Samia and Andre.
Katie Grace’s Story: Whole Genome Sequencing to Diagnose Leukodystrophy
Katie Grace’s balance and mobility issues were a mystery until a neurologic issue was identified as the cause. Whole genome sequencing through a clinical trial led by CHOP’s Leukodystrophy Center provided a clear diagnosis and a plan forward.
Hemispherotomy Brain Surgery to Treat Epilepsy: Colton’s Story
Thanks to the support of his adoptive parents and the relentless commitment of his care team at Children’s Hospital of Philadelphia, 5-year-old Colton has come a long way since suffering traumatic brain injury as a newborn.
Hemispherotomy Surgery to Treat Seizures: Matthew’s Story
Matthew has been through a lot in his young life. Thankfully, between his adoptive parents and his medical team at CHOP, he’s got a great support team in his corner.
Medical Management of Rett Syndrome: Clare’s Story
The knowledge and support they have received from their care team at CHOP has helped Clare’s parents manage her progressive neurodevelopmental disorder.
Prenatal Diagnosis of Hydrocephalus and Postnatal Shunt Surgery: Laurel’s Story
When Laurel was diagnosed with hydrocephalus while she was still in the womb, her parents turned to the best team to give their daughter the best chance in life.
Michael’s Story: Medical Management and Follow-Up After Perinatal Stroke
Brett and Jennifer will never forget the relief that came over them when paramedics arrived to transport their newborn son, Michael, to Children’s Hospital of Philadelphia.
Gavin’s Story: Spine Surgery to Correct a Deformity Caused By a Rare Genetic Neuromuscular Disorder
When Gavin was born, doctors didn’t expect him to survive, but thanks to a large team of specialists and a coordinated spine surgery, he’s defying the odds.
Thomas’s Story: Prenatal Diagnosis and Postnatal Surgical Repair of Encephalocele
One family shares their experience for parents who learn their child has a severe diagnosis before birth