Neuroscience Center Patient Stories
11 - 20 of 52
Brandon’s Story: Ketogenic Diet Cures Myoclonic Atonic Epilepsy

Read about Brandon's journey from dangerously uncontrollable seizures to seizure-freedom for the past 10 years.
Patrick’s Story: Intravenous Immunoglobulin to Treat MOGAD
For Eileen and Brenden, March 14, 2020, is not only memorable because it was the day the United States declared a National Emergency due to the COVID-19 outbreak. It was also the day their son, Patrick, suffered a concussion that led to a potentially life-changing diagnosis.
Nadia’s Story: Selective Dorsal Rhizotomy for Cerebral Palsy
Selective dorsal rhizotomy surgery followed by intensive physical and occupational therapy enabled Nadia to walk without an assistive device for the first time at age 6.
Kylen’s Story: Ketogenic Diet to Control Seizures

Just a few days after he was born, Kylen suffered four seizures and was diagnosed with epilepsy.
Killian’s Story: Medical Management of the IMPDH2 Genetic Variant

Call it a mother’s intuition. Though Killian appeared to be growing and developing normally during prenatal appointments, Jennifer couldn’t stop worrying something was wrong.
Holden and Elliott’s Story: MECP2 Duplication Syndrome

Holden and his brother, Elliott, share more than a love for cars and trucks. They also both have the same rare genetic neurologic disorder, known as MECP2 duplication syndrome.
Evan’s Story: Deep Brain Stimulation to Treat Complex Movement Disorders

There was no “book” Ellen could refer to for medical guidance on her son, Evan, who has a rare genetic mutation.
Brain Tumor: Devon’s Story

Devon underwent surgery, chemotherapy and proton therapy for a brain tumor the size of a softball. Within months, she started college and made the Dean’s List.
Sara's Story: Surgery to Treat Epilepsy
Sara lived with seizures until age 9. Her family flew 7,000 miles from United Arab Emirates so she could undergo epilepsy surgery at Children’s Hospital of Philadelphia. Every day since, Sara has told her mom how happy she is to have had the procedure.
Diego’s Story: Medical Management of Epilepsy Seizures and Transition to Adult Care

Diego had his first seizure in sixth grade. It began with a sudden, unusual sensation (known as an aura). The next thing he knew, he was in an ambulance.