Neuroscience Center Patient Stories
11 - 20 of 45
Brain Tumor: Devon’s Story

May is Brain Tumor Awareness Month. Devon underwent surgery, chemotherapy and proton therapy for a brain tumor the size of a softball. Within months, she started college and made the Dean’s List.
Sara's Story: Surgery to Treat Epilepsy
Sara lived with seizures until age 9. Her family flew 7,000 miles from United Arab Emirates so she could undergo epilepsy surgery at Children’s Hospital of Philadelphia. Every day since, Sara has told her mom how happy she is to have had the procedure.
Diego’s Story: Medical Management of Epilepsy Seizures and Transition to Adult Care

Diego had his first seizure in sixth grade. It began with a sudden, unusual sensation (known as an aura). The next thing he knew, he was in an ambulance.
Hassani’s Story: Hemispherotomy to Control Seizures from Hemimegalencephaly

Learning that their child has a brain condition was a traumatic experience for Samia and Andre.
Katie Grace’s Story: Whole Genome Sequencing to Diagnose Leukodystrophy

Katie Grace’s balance and mobility issues were a mystery until a neurologic issue was identified as the cause. Whole genome sequencing through a clinical trial led by CHOP’s Leukodystrophy Center provided a clear diagnosis and a plan forward.
Hemispherotomy Brain Surgery to Treat Epilepsy: Colton’s Story

Thanks to the support of his adoptive parents and the relentless commitment of his care team at Children’s Hospital of Philadelphia, 5-year-old Colton has come a long way since suffering traumatic brain injury as a newborn.
Hemispherotomy Surgery to Treat Seizures: Matthew’s Story

Matthew has been through a lot in his young life. Thankfully, between his adoptive parents and his medical team at CHOP, he’s got a great support team in his corner.
Medical Management of Rett Syndrome: Clare’s Story

The knowledge and support they have received from their care team at CHOP has helped Clare’s parents manage her progressive neurodevelopmental disorder.
Prenatal Diagnosis of Hydrocephalus and Postnatal Shunt Surgery: Laurel’s Story

When Laurel was diagnosed with hydrocephalus while she was still in the womb, her parents turned to the best team to give their daughter the best chance in life.
Michael’s Story: Medical Management and Follow-Up After Perinatal Stroke

Brett and Jennifer will never forget the relief that came over them when paramedics arrived to transport their newborn son, Michael, to Children’s Hospital of Philadelphia.