Epilepsy Program Patient Stories
1 - 10 of 17
Brandon’s Story: Ketogenic Diet Cures Myoclonic Atonic Epilepsy

Read about Brandon's journey from dangerously uncontrollable seizures to seizure-freedom for the past 10 years.
Nadia’s Story: Selective Dorsal Rhizotomy for Cerebral Palsy
Selective dorsal rhizotomy surgery followed by intensive physical and occupational therapy enabled Nadia to walk without an assistive device for the first time at age 6.
Kylen’s Story: Ketogenic Diet to Control Seizures

Just a few days after he was born, Kylen suffered four seizures and was diagnosed with epilepsy.
Sara's Story: Surgery to Treat Epilepsy
Sara lived with seizures until age 9. Her family flew 7,000 miles from United Arab Emirates so she could undergo epilepsy surgery at Children’s Hospital of Philadelphia. Every day since, Sara has told her mom how happy she is to have had the procedure.
Diego’s Story: Medical Management of Epilepsy Seizures and Transition to Adult Care

Diego had his first seizure in sixth grade. It began with a sudden, unusual sensation (known as an aura). The next thing he knew, he was in an ambulance.
Hassani’s Story: Hemispherotomy to Control Seizures from Hemimegalencephaly

Learning that their child has a brain condition was a traumatic experience for Samia and Andre.
Hemispherotomy Brain Surgery to Treat Epilepsy: Colton’s Story

Thanks to the support of his adoptive parents and the relentless commitment of his care team at Children’s Hospital of Philadelphia, 5-year-old Colton has come a long way since suffering traumatic brain injury as a newborn.
Hemispherotomy Surgery to Treat Seizures: Matthew’s Story

Matthew has been through a lot in his young life. Thankfully, between his adoptive parents and his medical team at CHOP, he’s got a great support team in his corner.
Learning to Grieve: Joseph “Joey” Nolan’s Story

Support from CHOP’s palliative care and bereavement specialists helped Joey’s family through the heartbreaking experience of losing a child and brother.
Genetic Testing for Epilepsy Helped Ryan Be the Rambunctious Kid He Is Today

After years of uncertainty, genetic testing for epilepsy helped identify the cause of Ryan’s seizures. With this breakthrough, he’s now nearly seizure free.