Psychosocial Support Services Patient Stories
1 - 7 of 7
Asher’s Story: Fetoscopic Endoluminal Tracheal Occlusion for Congenital Diaphragmatic Hernia

Asher came to CHOP for a fetal surgery procedure called FETO to treat his severe CDH before he was born, giving him the best chance to survive and thrive.
Helping Families Through Perinatal and Postpartum Loss: Ellie's Story
At CHOP, an experienced team guides families through immeasurable loss. Here, parents Emily and Justin share their thoughts on the support that mattered most during a heartbreaking experience.
Jaxon’s Story: Prenatal Diagnosis, Pregnancy Management and Postnatal Care of Congenital Diaphragmatic Hernia

When Jaxon’s family learned he had congenital diaphragmatic hernia, they traveled from West Virginia to seek care from the CDH experts in Philadelphia.
Twin Reversed Arterial Perfusion Sequence: Inés’ Story

Inés’ family credits an expert care team and seamless communication across the miles for saving their daughter’s life.
Teagan Joy's Story: Palliative Care for Skeletal Dysplasia
CHOP’s Perinatal Palliative Care and Bereavement team helped Shannon and Jason find joy during a time of grief as they prepared to say goodbye to their baby.
Sofia-Rose’s Spina Bifida Fetal Surgery Story

When Alicia and Matthew learned their unborn baby had spina bifida, the prognosis was grim. But the team at CHOP offered them hope through fetal surgery. See how she's doing 3 years later.
Janessa and Matt’s Story: A Path of Healing

The CHOP care team helped Janessa and Matt prepare for the loss of one daughter, while finding joy in welcoming another.