Rare Lung Diseases Center Patient Stories

Ada, 6, was healthy when she was born. She hit her early milestones with ease. As soon as Ada turned one, however, her health suddenly took a turn for the worse.

Bennett’s breathing easy after the tumor blocking his lung was removed not with surgery, but with cutting-edge techniques, treatments and trial medication.

Born at 26 weeks, Leila’s lungs failed to develop. Specialty care during her CHOP stay and after helped her breathe on her own and her family cope.

CHOP’s diagnosis and treatment of a rare lung disease solved a medical mystery for Jacob. Shared care with his Virginia pulmonologist is keeping him healthy.

From Chicago to Philadelphia: Parents of ailing teen go the distance for CHOP pulmonologist’s unique expertise.

From Day 1, June was breathing too rapidly. The Rare Lung Diseases Center diagnosed her condition: pulmonary interstitial glycogenosis. June was lucky; her mild case resolved on its own.