A High-Fiber Minestrone Soup Recipe
Published on in Spina Bifida Family Connection
Our minestrone soup recipe is healthy, high in fiber and perfect for a cold day.
Spina Bifida Program News and Updates
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Mindfulness: A Useful Coping Strategy
Published on in Spina Bifida Family Connection
Youth with chronic conditions like spina bifida and their families can experience high levels of stress.
Updates from the Spina Bifida Program
Published on in Spina Bifida Family Connection
An update on our first Education Day in November and more.
MOMS3: Follow-up in the Teen and Young Adult Years to the Management of Myelomeningocele Study
Published on in CHOP News
Phase three of the Management of Myelomeningocele Study (MOMS), known as “MOMS3,” is a study monitoring the health outcomes of participants ages15-24.
Meet Our Newest Spina Bifida Program Team Members
Published on in Spina Bifida Family Connection
We're very proud of the compassionate, highly qualified, competent professionals who make up our Spina Bifida Program team. Meet our newest team members and learn a little bit about their expertise and interests.
Therapy Spotlight: Supporting Spina Bifida Patients Through OT and PT
Published on in Spina Bifida Family Connection
Occupational and physical therapists support Spina Bifida Program patients in many ways. Learn about new resources and tips on bowel/bladder programs, and benefits of tummy time.
Social Work Corner: Tips to Stay Active and Have Fun
Published on in Spina Bifida Family Connection
Accessing resources for a child with special needs can be a challenging process. Two Spina Bifida Program team members provide resources to keep your child and family active and entertained.
Bowel Management for Spina Bifida
Published on in CHOP News
Our team takes an active role in helping our patients with spina bifida become more independent with neurogenic bowel management. From training patients and families in the use of transanal irrigation systems to developing a novel cone enema system.
The Role of the Fetal Spina Bifida APN Program Coordinator
Published on in In Utero Insights
Families who receive a diagnosis of the most severe forms of spina bifida need an amazing level of support and care coordination from prenatal diagnosis through delivery, treatment and discharge.
Recent Study Finds Myelomeningocele Sac Associated with Worse Lower Extremity Neurologic Sequelae
Published on in In Utero Insights
In fetuses with open spinal dysraphism, the risk of talipes is increased with an MMC sac, and a larger sac may result in additional injury through mechanical stretching of the nerves.