Mindfulness: A Useful Coping Strategy
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Youth with chronic conditions like spina bifida and their families can experience high levels of stress.
Spina Bifida Program News and Updates
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Updates from the Spina Bifida Program
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An update on our first Education Day in November and more.
A High-Fiber Minestrone Soup Recipe
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Our minestrone soup recipe is healthy, high in fiber and perfect for a cold day.
MOMS3: Follow-up in the Teen and Young Adult Years to the Management of Myelomeningocele Study
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Phase three of the Management of Myelomeningocele Study (MOMS), known as “MOMS3,” is a study monitoring the health outcomes of participants ages15-24.
Social Work Corner: Tips to Stay Active and Have Fun
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Accessing resources for a child with special needs can be a challenging process. Two Spina Bifida Program team members provide resources to keep your child and family active and entertained.
Meet Our Newest Spina Bifida Program Team Members
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We're very proud of the compassionate, highly qualified, competent professionals who make up our Spina Bifida Program team. Meet our newest team members and learn a little bit about their expertise and interests.
Therapy Spotlight: Supporting Spina Bifida Patients Through OT and PT
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Occupational and physical therapists support Spina Bifida Program patients in many ways. Learn about new resources and tips on bowel/bladder programs, and benefits of tummy time.
Bowel Management for Spina Bifida
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Our team takes an active role in helping our patients with spina bifida become more independent with neurogenic bowel management. From training patients and families in the use of transanal irrigation systems to developing a novel cone enema system.
The Role of the Fetal Spina Bifida APN Program Coordinator
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Families who receive a diagnosis of the most severe forms of spina bifida need an amazing level of support and care coordination from prenatal diagnosis through delivery, treatment and discharge.
Recent Study Finds Myelomeningocele Sac Associated with Worse Lower Extremity Neurologic Sequelae
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In fetuses with open spinal dysraphism, the risk of talipes is increased with an MMC sac, and a larger sac may result in additional injury through mechanical stretching of the nerves.