Spina Bifida Program News

Our team takes an active role in helping our patients with spina bifida become more independent with neurogenic bowel management. From training patients and families in the use of transanal irrigation systems to developing a novel cone enema system.

In fetuses with open spinal dysraphism, the risk of talipes is increased with an MMC sac, and a larger sac may result in additional injury through mechanical stretching of the nerves.

Families who receive a diagnosis of the most severe forms of spina bifida need an amazing level of support and care coordination from prenatal diagnosis through delivery, treatment and discharge.

New findings from the latest MOMS2 analysis show prenatal repair of the spinal column confers physical gains that extend into childhood.

The Medical Assistance Transportation Program offers door-to-door medical transport to your child’s appointments at CHOP as well as a mileage reimbursement program if you use your own vehicle to drive to your child’s medical appointments.

Children born with spina bifida may have unique patterns of academic strengths as well as challenges. Read advice on how parents can advocate for their child.

A decade after the MOMS trial, new findings show significant physical and emotional benefits in school-age children who had prenatal surgery for spina bifida.

New Research Related to Breastfeeding Late Preterm Infants with Spina Bifida

For parents who find out their unborn baby has spina bifida, the biggest question is often “what do I do next?” Here’s advice on where to start.

For families facing a prenatal diagnosis of clubfoot, our CFDT and orthopaedic experts meet with families to discuss findings, postnatal management, treatment options, and long-term prognosis.