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Families who receive a diagnosis of the most severe forms of spina bifida need an amazing level of support and care coordination from prenatal diagnosis through delivery, treatment and discharge.
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In fetuses with open spinal dysraphism, the risk of talipes is increased with an MMC sac, and a larger sac may result in additional injury through mechanical stretching of the nerves.
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New findings from the latest MOMS2 analysis show prenatal repair of the spinal column confers physical gains that extend into childhood.
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Children born with spina bifida may have unique patterns of academic strengths as well as challenges. Read advice on how parents can advocate for their child.
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Here are some tips for keeping your children and family safe and healthy, both physically and mentally, during the ongoing COVID-19 pandemic.
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We are pleased to introduce our new Spina Bifida Family Advisory Board, which is comprised of family members of patients with spina bifida and young adults living with spina bifida.
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The Medical Assistance Transportation Program offers door-to-door medical transport to your child’s appointments at CHOP as well as a mileage reimbursement program if you use your own vehicle to drive to your child’s medical appointments.
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Introducing our new occupational therapists, who can’t wait to meet all of our amazing patients and families and help foster independence in all aspects of your child's life.
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A high-fiber diet is crucial to a successful bowel regimen. Here’s a quick and easy formula for determining your child’s daily fiber requirement as well as a recipe for tasty, high-fiber bran muffins.
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Taking care of your skin in the summer can be tricky, and for individuals with spina bifida, there are a few unique factors to pay special attention to.