Alagille Syndrome Resources

Websites

The Alagille Syndrome Alliance (ALGSA) is an international support network for people with AGS and their families. ALGSA provides financial assistance, educational podcasts, research grants, ways to get involved, and much more.

This foundation is devoted to providing support for research and education into the causes, diagnoses, prevention and treatment of all liver disease.

ChiLDRN Supports the discovery of new diagnostics, etiologic and treatment options for children with liver disease, and those who undergo liver transplantation.

CLDF is a unique national charity dedicated to taking action against the effects of all liver diseases of childhood.

GeneTests is a medical genetics information resource developed for physicians, genetic counselors, other healthcare providers and researchers.

PALF aims at identifying, characterizing, and developing management strategies for infants, children, and adolescents who present with acute liver failure.