The A-T Children's Project is a nonprofit that raises funds to support research aimed at finding life-improving therapies and a cure for ataxia-telangiectasia.
The A-T Society works to improve quality of life and care for people living with ataxia-telangiectasia while promoting research to lengthen lives and find a cure.
It addresses the growing concern surrounding the misuse of genetic information in health insurance and employment decisions.
GeneReviews are expert-authored, peer-reviewed disease descriptions focused on the diagnosis, management and genetic counseling for people with inherited conditions.
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
GINA is a federal law designed to protect people in the United States from genetic discrimination in health insurance and employment.