Managing Hyperinsulinism with Expert Care, Resilience and Preparedness
As a lifelong CHOP patient receiving care for a rare genetic disorder, congenital hyperinsulinism (HI), Katelyn now trusts the same care team for her son’s treatment.
Patient stories
Congenital Hyperinsulinism Patient Stories
Congenital Hyperinsulinism: Oliver’s Story
When 6-month-old Oliver began seizing in the middle of the night, his family discovered he had a rare condition called congenital hyperinsulinism. Their journey led them to CHOP’s world-renowned HI Center — and to nearly two decades of giving back to advance research and care.
Generations of Strength: Kristen’s Journey with Congenital Hyperinsulinism
Congenital hyperinsulinism runs in Kristen’s family. Discover how CHOP has helped Kristen and her daughter manage this rare condition across generations.
Three Generations Under CHOP’s Care for HI
Grandfather, mom and granddaughter have all been treated at CHOP for congenital hyperinsulinism (HI). This family’s history shows the evolution of HI care.