Hyperinsulinism Advocate Extraordinaire: Kaylee and Kathleen's Story
When her daughter's HI/HA was well managed, this mom turned her attention to advocating for her child's needs at school.
Patient stories
Congenital Hyperinsulinism Patient Stories
Congenital Hyperinsulinism: Odinn’s Story
Óðinn Orri Sævarsson was born with a potentially life-threatening disease rarely seen in Iceland, congenital hyperinsulinism (HI). Quick action and a team effort between Icelandic specialists and CHOP's International Patient Services got Óðinn to CHOP for treatment, where he was cured.
The Long Journey to Finding a Treatment that Works: Dante's Story
I told them CHOP was the best place for Dante to go … When I need their expertise, they’re there.
Beckwith-Wiedemann Syndrome and Hyperinsulinism: Cooper's Story
Cooper traveled from Rhode Island to CHOP for treatment of Beckwith-Wiedemann syndrome and hyperinsulinism. Now 2 1/2 years old, he is happy, active and intellectually on target.