Hyperinsulinism and Beckwith-Wiedemann Syndrome During the Pandemic: Dominic’s Story
With a dual diagnosis of two genetic conditions, Dominic’s family came from California to CHOP during the pandemic to ensure he got the specialized care he needed.
Patient stories
Congenital Hyperinsulinism Patient Stories
Congenital Hyperinsulinism and Beckwith-Wiedemann Syndrome: Alina’s Story
The partnership between her doctors at The Congenital Hyperinsulinism Center at CHOP and her local medical team in California is keeping Alina healthy and allowing her to be a typical toddler. However, her beginning was anything but typical.
Hyperinsulinism and Post-pancreatectomy Diabetes: Jenny’s Story
A CHOP research study seeks to even out the ups and downs of post-pancreatectomy diabetes. Jenny, who has hyperinsulinism, can’t wait for the results.
From Personal to Public Advocacy: Ben’s Hyperinsulinism Story
The rare is commonplace at CHOP, and for children with extremely low blood sugar from hyperinsulinism, that expertise changes lives, as Ben’s family learned.