Multiple Endocrine Neoplasia Type 1 Resources
Websites
American Cancer Society
https://www.cancer.org/cancer/cancer-in-children.html
The American Cancer Society website offers helpful information about childhood cancer diagnosis, treatment, prognosis and resources.
Coalition for Genetic Fairness
http://www.geneticfairness.org/
It addresses the growing concern surrounding the misuse of genetic information in health insurance and employment decisions.
GeneReviews™
http://www.ncbi.nlm.nih.gov/books/NBK1116/
GeneReviews are expert-authored, peer-reviewed disease descriptions focused on the diagnosis, management and genetic counseling for people with inherited conditions.
National Cancer Institute
http://www.cancer.gov/cancertopics/types/childhoodcancers
NCI's website includes links to information about treatment, clinical trials, testing and research.
National Endocrine and Metabolic Diseases Information Service
http://endocrine.niddk.nih.gov
This website provides information about endocrine and metabolic diseases, statistics, research, resources, publications and more.
National Endocrine and Metabolic Diseases Information Service
http://endocrine.niddk.nih.gov
This website provides information about endocrine and metabolic diseases, statistics, research, resources, publications and more.
National Organization for Rare Disorders (NORD)
http://www.rarediseases.org/
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
Stupid Cancer: The Voice Of Young Adult Cancer
http://stupidcancer.org/
Stupid Cancer is an all-inclusive young adult cancer community that empowers those affected by young adult cancer.
The Genetic Information Nondiscrimination Act (GINA)
http://ghr.nlm.nih.gov/spotlight=thegeneticinformationnondiscriminationactgina
GINA is a federal law designed to protect people in the United States from genetic discrimination in health insurance and employment.