Rhabdoid Tumor Predisposition Syndrome Resources


The American Cancer Society website offers helpful information about childhood cancer diagnosis, treatment, prognosis and resources.

Its mission is to improve the treatment, quality of life and the long-term outlook of children with brain tumors through research, support, education, and advocacy to families and survivors.

It addresses the growing concern surrounding the misuse of genetic information in health insurance and employment decisions.

GeneReviews are expert-authored, peer-reviewed disease descriptions focused on the diagnosis, management and genetic counseling for people with inherited conditions.

NCI's website includes links to information about treatment, clinical trials, testing and research.

The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.

GINA is a federal law designed to protect people in the United States from genetic discrimination in health insurance and employment.